The University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD) is federally funded by the Administration on Community Living (ACL). Our vision is that all people, including children and adults living with disabilities, and their families, fully participate in society and live healthy, safe, self-determined and productive lives in the community.
I am answering the survey as: An individual with a disability/ a self-advocate
A family member/caregiver of an individual with a disability OR as a professional
Early Childhood Education 1. Does your child or do the children you work with currently receive Early Intervention (EI) services? If you answer no, you will skip to question #9. Yes No Not sure
2. Does your child or do the children you work with currently have an Individualized Family Service Plan (IFSP)? Yes No Not sure
3. Do you think that young children (0-5 years) who are at risk or have a disability have access to quality early childhood education programs? Yes No Not sure N/A
4. Do you think that young children with disabilities (0-5 years) are fully included in early childhood education programs/pre-school settings in Ohio? Yes No Not sure N/A
5. Do you think that early childhood education teachers/professionals are well informed about evidence-based/best practice in inclusive early childhood education? Yes No Not sure N/A
6. Do you think that parents/caregivers of young children (0-5 years) at-risk for or who have a disability are well-informed about resources and services that are available to them? Yes No Not sure N/A
7. Do you think that most healthcare providers (e.g. pediatricians, family doctors, nurse practitioners, etc.) provide developmental screenings/assessments during child well-visits, and provide referrals, information, and resources when they suspect or see a risk for disability? Yes No Not sure N/A
8. Do you think that parents/caregivers know how to navigate the healthcare system so their young child (0-5 years) receives the treatment, services, and interventions that the child needs? Yes No Not sure N/A
School-Age and School-Based Services 9. Is your child or are the children you work with between the ages of 5-22 years and currently receives/receive school-based services? If you answer no, you will skip to question #18.
Yes No
9. Are you between the ages of 5-22 years and do you receive school-based services? If you answer no, you will skip to question #18.
Yes No
10. Your child or the children you work with receive school-based services through: An Individualized Education Plan (IEP) A 504 Plan Not sure
10. You receive school-based services through:
An Individualized Education Plan (IEP) A 504 plan Not sure
11. Do you think that children and teenagers with disabilities receive the educational services and accommodations they need to be successful in school? Yes No Not sure N/A
11. Do you think that you receive the educational services and accommodations you need to be successful in school?
Yes No Not sure N/A
12. Do you think that children and teenagers with disabilities receive the educational services and accommodations they need to be successful in their transition to adult life, including life-skills (e.g. scheduling appointments, taking care of their money, grocery shopping, participating in sports/arts activities, etc.) and employment/post-secondary education skills (applying for a job or college, participating in an interview, managing tasks and assignments, engaging with coworkers or other students, etc.)? Yes No Not sure N/A
12. Do you think that you receive the educational services and accommodations you need to be successful in transition to adult life, including life-skills and employment (a job)/post-secondary education (college) skills?
Yes No Not sure N/A
13. Do you think that children with disabilities are included most of the time in general education classrooms and during school activities, such as recess, field trips, etc.? Yes No Not sure N/A
13. Are you included in general education sessions and activities, including recess, field trips, etc. for most of the day in school?
Yes No Not sure N/A
14. Do you think that youth who have a disability and are 14 years and older are included in IEP team meetings as active members of the team? Yes No Not sure N/A
14. Are you included in your IEP team meetings as an active member of the team?
Yes No Not sure N/A
15. Do you think that parents/caregivers are included in IEP team meetings as active members of the team? Yes No Not sure N/A
15. Do you think that parents/caregivers are included in IEP team meetings as active members of the team?
Yes No Not sure N/A
16. Do you think that in general, IEP plans consist of goals that move children/youth with disabilities along in their academic and life trajectories for a successful, community-based future? Yes No Not sure N/A
16. Do you think that the goals in your IEP/accommodations from your 504 Plan help you to be prepared for a successful life in the community after school ends?
Yes No Not sure N/A
17. Do you think that parents/caregivers are adequately prepared for the transition of their children/youth from school to job training, post-secondary education, employment and community-based life? Yes No Not sure N/A
17. Do you think that your parents/caregivers know about and have the resources to help you with your transition from school to job training, post-secondary education, employment and community-based life?
Yes No Not sure N/A
Transition to Adult Life in the Community 18. Do you have a child or do you work with a child/children of transition age (~12-26 years of age) who receive transition services? If you answer no, you will skip to question #24. Yes No
18. Are you of transition age (~12-26 years of age) and receive transition services? If you answer no, you will skip to question #24.
Yes No
19. Your child or the children you serve receives/receive transition services through: An Individualized Education Plan (IEP) A 504 Plan Not sure
19. You receive transition services through:
An Individualized Education Plan (IEP) A 504 plan Not sure
20. Do you think that transition coordinators/career counselors discuss post-secondary education options (e.g. community college, four-year college, college experience programs) and alternatives (e.g. training programs, trade schools, jobs, etc.) with transition-age students who have developmental disabilities (~12-26 years)? Yes No Not sure N/A
20. Have you met with a transition coordinator or career counselor to discuss post-secondary education options (e.g. community college, four-year college, college experience programs) and alternatives (e.g. training programs, trade schools, jobs, etc.)?
Yes No Not sure N/A
21. Do transition-age youth with developmental disabilities participate in job exploration programs that showcase a variety of careers? Yes No Not sure N/A
21. Have you participated in job exploration programs that show you a variety of careers/jobs?
Yes No Not sure N/A
22. Do parents/caregivers receive the information/guidance they need (e.g. from school, career coaches, service agencies, etc.) to facilitate a successful transition from school to adult life for their child? Yes No Not sure N/A
22. Do parents/caregivers receive the information/guidance they need (e.g. from school, career coaches, service agencies, etc.) to facilitate a successful transition from school to adult life for their child?
Yes No Not sure N/A
Family Support 24. Do you/have you had experience with a friend, family member, or a professional providing you or your client's family with support so you/they could take a break? If you answer no, you will skip to question #33. Yes No
24. Do you/have you had experience with a friend, family member, or a professional providing you with support so your regular caregivers (e.g. family members, friends) could take a break? If you answer no, you will skip to question #33.
Yes No
25. Do you currently receive or have you ever received any type of formal (through an agency, paid through a waiver, etc.) respite/support services (e.g. care for your child/adult who has developmental disabilities) so that you could go shopping, go out for dinner, take a vacation, etc.)? Yes No Not sure N/A
25. Have the family members/friends who help you ever received any type of formal (through an agency, paid through a waiver) respite/support services so that they could go shopping, go out for dinner, take a vacation, while someone else provided support to you (e.g. direct support professional, nurse, etc.)?
Yes No Not sure N/A
26. Do you currently receive or have you ever received any type of informal support/respite (through family members, friends, babysitter, etc.) ? Yes No Not sure N/A
26. Have the family members/friends who support you ever received any type of informal support (e.g. another family member, another friend, etc.) so they could go out for dinner, go shopping, go on a vacation, etc.?
Yes No Not sure N/A
27. Do you think that family members of children, youth, and adults who have developmental disabilities receive enough respite care/support that they need to have a good quality of life? Yes No Not sure N/A
27. Do you think that your family members/friends who help you regularly receive enough respite care/support to have a good quality of life?
Yes No Not sure N/A
28. Do you think that family members receive the support they need to successfully navigate the healthcare system, including health insurance? Yes No Not sure N/A
28. Do you think that family members/caregivers receive the support they need to successfully navigate the healthcare system, including health insurance?
Yes No Not sure N/A
29. Do family members/caregivers receive the support they need to successfully navigate the developmental disabilities service system? Yes No Not sure N/A
29. Do you think that family members/caregivers receive the support they need to successfully navigate the developmental disabilities service system?
Yes No Not sure N/A
30. Do family members/caregivers of children, youth, and adults who have developmental disabilities receive the training/information they need to be effective and successful advocates for their loved ones? Yes No Not sure N/A
30. Do you think that your family members/caregivers receive the training/information they need to be effective and successful advocates for you?
Yes No Not sure N/A
31. Do you think that family members/caregivers of children, youth, and adults who have developmental disabilities receive the training/information they need to plan and implement a successful life in the community for their loved ones (e.g. friendship, interests/hobbies, participation in the community, independence, etc.)? Yes No Not sure N/A
31. Do you believe that your family members/caregivers have the training/information they need to help you plan and implement a successful life in the community? (e.g. friendship, interests/hobbies, participation in the community, independence, etc.).
Yes No Not sure N/A
32. Do you think that family members/caregivers are well connected to other families (who have loved ones with or without disabilities) to support one another? Yes No Not sure N/A
32. Do you think that your family members/caregivers are well connected with other families that can provide support to each other?
Yes No Not sure N/A
Community Living and Employment 35. Does your adult child or adult you support work in the community (e.g. volunteer work, paid work in community-based setting) at least part-time? Yes No Not sure N/A
35. Do you work in the community (e.g. volunteer work, paid work in community-based setting) at least part-time?
Yes No Not sure N/A
36. Does your child/youth/young adult/ currently participate in inclusive community-based recreational activities (e.g. sports, arts, spiritual/religious, etc.)? Yes No Not sure N/A
36. Do you currently participate in inclusive community-based recreational activities (e.g. sports, arts, spiritual/religious, etc.)?
Yes No Not sure N/A
37. Does your child/youth/young adult/ currently participate in segregated community-based recreational activities (e.g. Special Olympics, condition-specific activities, disability sports leagues, etc.)? Yes No Not sure N/A
37. Do you currently participate in segregated community-based recreational activities (e.g. Special Olympics, condition-specific activities, disability sports leagues, etc.)?
Yes No Not sure N/A
39. Do you think that youth and young adults with developmental disabilities receive enough education about friendships and safe sexual relationships (including reproductive rights and information about parenting with a disability)? Yes No Not sure N/A
39. Do you think that you have received enough education about friendships and safe sexual relationships (including reproductive rights and information about parenting with a disability) through family members, school or community-based organizations?
Yes No Not sure N/A
40. Do you think that youth and adults with developmental disabilities receive enough education about assistive technology that can support them in their independence and safety in their community? Yes No Not sure N/A
40. Did you receive education/information about assistive technology and how it can support your independence and safety in the community?
Yes No Not sure N/A
41. Do you think that family members/caregivers receive enough information/education about assistive technology to understand how it can best support youth and adults in their independence and safety in their community? Yes No Not sure N/A
41.Do you think that family members/caregivers receive enough information/education about assistive technology to understand how it can best support their loved one with independence and safety in the community?
Yes No Not sure N/A
42. Do you think that family members/caregivers receive enough information/education about guardianship and alternative options to guardianship (e.g. Power of Attorney, Supported Decision-Making, etc.) to make informed decisions about what is best for their loved one/family? Yes No Not sure N/A
42. Do you think that you have received enough information and education about guardianship and alternative options to guardianship (e.g. Power of Attorney, Supported Decision-Making, etc.) that you were able to make an informed decision about what the best option was for you?
Yes No Not sure N/A
43. Do you think that people with disabilities/self-advocates know enough about supported decision making to use it in and for their daily life? Yes No Not sure N/A
43. Do you know enough about supported decision making to use it in your daily life?
Yes No Not sure N/A
44. Do you think that professionals working within the field of Developmental Disabilities (Service and Support Administrators (SSAs), Case Managers, Direct Support Providers, etc.) receive the education and have the skills to successfully support people with disabilities in exploring and experiencing community-based living and employment? Yes No Not sure N/A
44. Do you think that professionals working within the field of Developmental Disabilities (Service and Support Administrators (SSAs), Case Managers, Direct Support Providers, etc.) receive the education and have the skills to successfully support people with disabilities in exploring and experiencing community-based living and employment?
Yes No Not sure N/A
45. Do you think that people with disabilities/self-advocates have access to professionals who support them to live self-determined, in/inter-dependent, safe, healthy, fulfilling and meaningful lives in the community? Yes No Not sure N/A
45. Do you have access to professionals who support you in living a self-determined, in/inter-dependent, safe, healthy, fulfilling and meaningful life in the community?
Yes No Not sure N/A
46. Do you think that people with disabilities/self-advocates have access to community-based services, including transportation and housing, to live self-determined, in/inter-dependent, safe, healthy, fulfilling and meaningful lives in the community? Yes No Not sure N/A
46. Do you have access to community-based services, including transportation and housing, to live a self-determined, in/inter-dependent, safe, healthy, fulfilling and meaningful life in the community?
Yes No Not sure N/A
Healthcare and Health Promotion 47. Do you have experience with the healthcare system and/or health promotion activities as a family member/caregiver or as a professional working with people with disabilities? If you answer no, you will skip to question #60. Yes No
47. Do you have experience with the healthcare system and/or health promotion activities? If you answer no, you will skip to question #60.
Yes No
48. Does your child/youth/adult with a developmental disability currently have difficulty accessing a pediatrician/primary care provider in the community? Yes No Not sure N/A
48. Do you currently have difficulty accessing a primary care provider in the community?
Yes No Not sure N/A
49. Does your child/youth/adult with a developmental disability currently have difficulty accessing one or more specialists (e.g. Neurologist, Urologist, OB/GYN, Psychiatrist, etc.) in the community? Yes No Not sure N/A
49.Do you currently have difficulty accessing one or more specialists (e.g. Neurologist, Urologist, OB/GYN, Psychiatrist, etc.) in the community?
Yes No Not sure N/A
50. Does your child/youth/adult with a developmental disability currently have difficulty accessing a behavioral health specialist/psychologist in the community? Yes No Not sure N/A
50. Do you currently have difficulty accessing a behavioral health specialist/psychologist in the community?
Yes No Not sure N/A
51. Does your child/youth/adult with a developmental disability currently have difficulty accessing a dentist in the community? Yes No Not sure N/A
51.Do you currently have difficulty accessing a dentist in the community?
Yes No Not sure N/A
52. Does your child/youth/adult with a developmental disability currently have difficulty getting needed medical care covered by health insurance? Yes No Not sure N/A
52. Do you currently have difficulty getting needed medical care covered by your health insurance?
Yes No Not sure N/A
53. Does your child/youth/adult with a developmental disability currently have difficulty getting needed behavioral/mental health care covered by health insurance? Yes No Not sure N/A
53. Do you currently have difficulty getting needed behavioral/mental health care covered by your health insurance?
Yes No Not sure N/A
54. Do you think that healthcare providers receive the training they need to serve children, youth, and adults with developmental disabilities successfully in community-based settings? Yes No Not sure N/A
54. Do you think that healthcare providers receive the training they need to serve children, youth, and adults with developmental disabilities successfully in community-based settings?
Yes No Not sure N/A
55. Does your child/youth/adult with a developmental disability currently have difficulty getting needed dental care covered by health insurance? Yes No Not sure N/A
55. Do you currently have difficulty getting needed dental care covered by health insurance?
Yes No Not sure N/A
56. Do you think that mental health providers receive the training they need to serve children, youth, and adults with developmental disabilities successfully in community-based settings? Yes No Not sure N/A
56. Do you think that mental health providers receive the training they need to serve children, youth, and adults with developmental disabilities successfully in community-based settings?
Yes No Not sure N/A
57. Do you think that dental care providers receive the training they need to serve children, youth, and adults with developmental disabilities successfully in community-based settings? Yes No Not sure N/A
57. Do you think that dental care providers receive the training they need to serve children, youth, and adults with developmental disabilities successfully in community-based settings?
Yes No Not sure N/A
58. Do you think that health promotion programs (e.g. nutrition programs, smoking cessation programs, fitness programs, etc.) in the community are accessible to people with developmental disabilities? Yes No Not sure N/A
58. Do you think that health promotion programs (e.g. nutrition programs, smoking cessation programs, fitness programs, etc.) in the community are accessible to you?
Yes No Not sure N/A
60. What are 1-2 things you would like to see improve for Ohioans with developmental disabilities and their family members/caregivers over the next 5 years?
61. What are 1-2 things you would like to see improve for professionals working with and supporting Ohioans with developmental disabilities and/or their family members/caregivers over the next 5 years?
62. What are some things that Ohio is doing well when it comes to people with disabilities, their caregivers, family members and professionals who work in the field?
Demographic Information Please complete the demographic questions. It is important for us to know who we have reached with our survey and who was able to give input on our work for the next 5 years. We hope to get input from many people from different backgrounds. We won't know unless you complete the demographic questions. If you are a professional who has completed our survey or if you are a parent/caregiver of multiple children with disabilities, please choose one person who is closest to representing who you care for, for the purpose of completing the demographic questions.
64. Relationship to the Person with a Disability: Parent/Guardian Sibling Foster parent Other family member (e.g. Grandparent, Cousin, etc.) Service provider Educator Self Other
If "Other" please explain
65. Age of the Person with a Disability: 0-3 years of age (early chilldhood) 4-5 years of age (preschool) 6-22 (school age) 23-35 years of age (young adult) 36-64 years of age (adult) 65+ years of age (older adult) Multiple ages Prefer not to answer
66. Your Age: Under 18 years 18-25 years 26-35 years 36-45 years 45-64 years 65+ years of age Prefer not to answer
67. Race of the Person with a Disability: African American/Black Asian Native American Two or more Races White/Caucasian Prefer not to answer Other
If "Other" please explain
68. Your race: African American/Black Asian Native American Two or more Races White/Caucasian Prefer not to answer Other
If "Other" please explain
69. Ethnicity of the Person with a Disability: Hispanic Non-Hispanic Prefer not to answer
70. Your Ethnicity Hispanic Non-Hispanic Prefer not to answer
71. Do You Live in a(n): Urban Area Suburban Area Rural Area Not Sure N/A
72. Does the Person with a Disability Live in a(n): Urban Area Suburban Area Rural Area Not Sure N/A
73. Do You consider Yourself as having a Disability? Yes No Not sure N/A
74. Primary Disability of the Person with a Disability: Attention Deficit Hyperactivity Disorder (ADHD) Autism Spectrum Disorder Cerebral Palsy Chronic Health Condition (e.g Asthma, Cancer, Diabetes) Down Syndrome Hearing Impairment/Deaf Intellectual Disability Learning Disability Mobility Impairment Multiple Disabilities/Complex Needs (Rare) Genetic Syndrome/Condition Seizure Disorder Spina Bifida Vision Impairment/Blind Prefer not to answer Other
If "Other" please explain
Attention Deficit Hyperactivity Disorder (ADHD) Autism Spectrum Disorder Cerebral Palsy Chronic Health Condition (e.g Asthma, Cancer, Diabetes) Down Syndrome Hearing Impairment/Deaf Intellectual Disability Learning Disability Mobility Impairment Multiple Disabilities/Complex Needs (Rare) Genetic Syndrome/Condition Seizure Disorder Spina Bifida Vision Impairment/Blind Prefer not to answer Other
If "Other" please explain
Working...